A world without
connective
tissue disease.

Connovia is a patient-driven therapeutics accelerator advancing medical treatments for Marfan syndrome and related genetic connective tissue diseases. Our ambition is to end the harm these conditions cause and free people’s bodies and lives from disease. We’re changing the future of connective tissue disease.

We have come so far.
There is more to be done.

We are grateful for the physicians, researchers, patients, and families who changed what it meant to live with a connective tissue disease. Surgical advances have made lives possible that once would have been cut short. Children have grown up. Families have had more time together. That progress is profound.

But a longer life doesn’t always mean a better life. Pain, fatigue, changes in vision, and the threat of serious complications can shape even the smallest moments of the day. People still lose their lives to these diseases.

No one should have to be
this brave every day.

Protect life.
Improve quality of life.

Our proposed focus spans vascular disease, the bones and joints that make movement possible, and the eyes that let us see the world. We want treatments that address both life-threatening complications and the daily burdens that too often go unanswered.

The whole person
01

Vascular disease

02

Bones and joints

03

Eyes

Start with the life
you want to live.

We will begin with the problems patients want solved. Then we will work backward: identify promising science, bring the right experts together, and fund the studies needed to move potential treatments toward development.

Our ambition is a cure.

Every step that protects life, eases pain, preserves sight, or restores movement matters along the way.

Help build
what comes next.

Connovia is in its founding stage. We are building scientific relationships and assessing where we can make the greatest difference for people living with connective tissue disease.

Over the next year, we aim to identify our first therapeutic priorities, bring together the expertise to pursue them, and raise the funding needed to begin testing the strongest opportunities.

Our Founding Circle will help make that work possible. Early supporters will help shape what Connovia can take on first and receive updates on the science, the decisions, and the progress their support enables.

Explore the Founding Circle
Family members of different generations celebrating together